My STORI Symptom Management App

The My STORI^TM app was developed for brain and spine tumor patients and caregivers. Learn how this free mobile app—which is available in both English and Spanish—can help you track and manage your symptoms and self-care activities. 

People living with a brain or spine tumor can experience a variety of symptoms caused by the tumor or treatments. These symptoms can affect their lives in many ways, including how they feel, whether they can work, and how they tolerate treatments. 

Our research has shown that the most common symptoms that people with a brain or spine tumor experience are fatigue, sleep disturbance, mood disturbance, seizures, headache, body pain, cognitive symptoms, constipation, nausea, vomiting, diarrhea, weakness, and difficulty walking. It is common to experience more than one symptom at the same time.  

“We work together with our patients to reduce symptoms that not only impact their quality of life but also their survival,” says Terri Armstrong, Ph.D., senior investigator and deputy chief at the NCI Center for Cancer Research's Neuro-Oncology Branch (NOB). 

“Managing symptoms is an integral part of patient care, but tools to help track symptoms and self-management for this population are lacking,” adds Orieta Celiku, Ph.D., project co-leader and staff scientist at the NOB. 

To lessen the burden of symptom management, an NOB team—including application developer Mahendar Ramidi and members of the NOB clinical research and care teams—developed the My STORI^TM mobile app. This app helps people with a brain or spine tumor and their loved ones track, organize, and manage symptoms and self-care activities. 

“We wanted to make sure that caregivers can also use the app and help their loved ones track their symptoms and manage their health condition,” Ramidi explains. 

"By having easy access to information about self-care strategies with a symptom tracker, our hope is to improve your care and communication with your health care team," says Kristin Odom, app designer and former communications editor at the NOB. 

What is Included in the My STORI^TM  App?

In the app, you will be able to capture your unique experience by: 

• Tracking your daily symptoms and their severity 
• Tracking the impact your symptoms have on physical functions and social activities 
• Finding self-care information on how to recognize, manage, and report your symptoms 
• Learning self-care strategies to improve your symptoms 
• Tracking your self-care activities, such as diet, exercise, sleep, and medications 
• Tracking your treatments and clinical appointments 
• Tracking how your symptoms change over time and how they are impacted by appointments, treatments, and self-care activities 
• Generating a report of tracked activities 
• Sharing reports with your health care team or loved ones, or saving them to your health care record

The My STORI^_TM  app provides general guidelines. Specific reporting and care instructions should come from your health care team. The app will only collect information that you choose to enter, and the data will only be stored on your mobile device. You can decide what information you want to share and whom you want to share it with. 

Using the app can help you recognize patterns in your symptoms and self-care activities so that you can do things that matter most to you. 

Download the My STORI^TM  App 

The app is currently available in English and Spanish for Apple and Android devices via the Apple App Store and the Google Play Store. The app language will default to match your phone's language.

If you do not have access to an Apple or Android mobile device, view the symptom management section of our website to learn how you or your caregiver can recognize, manage, and report your symptoms. 

Need help navigating the app? View our instructional video. If you have further questions, email us at mystori@nih.gov. 

For details about privacy policy and terms of use, please review the My STORI^TM Privacy Policy and Terms of Use. 

Find the My STORI^TM app on the Apple App Store

Find the My STORI^TM app on the Google Play Store 

My STORI is a trademark of the U.S. Department of Health and Human Services.