NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Q&A: Understanding Brain Tumor Treatment, Impact, and ResearchOur neuro-oncology providers share answers to important questions about brain tumor care, treatment, impact, and innovative research.
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Army Neurologist Helps Provide Multidisciplinary Care to Rare CNS Tumor PatientsRead how Dr. Brett Theeler is helping treat and educate patients with PXA and APXA tumors, which are among the rarest of rare brain and spine cancers.
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National Non-Profit Unites and Empowers the Brain Tumor CommunityRead how a national advocacy organization has helped unify and mobilize a community to advance care and knowledge for brain tumor patients and their families.
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PXA Tumor Survivor Starts His Life Over After Learning He Was MisdiagnosedDarien shares how he lived with what he thought was an aggressive brain cancer for eight years. Then, he got an accurate low-grade rare tumor diagnosis and made a fresh start.
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2019 Ependymoma Consensus MeetingNeuro-oncology experts worldwide met to advance their knowledge and collaborate to find better treatments for people with ependymoma.
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Ependymoma Foundation Informs and Inspires a Rare Cancer CommunityKimberly Wallgren shares how her father’s cancer inspired a non-profit to educate and connect people living with ependymoma.
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Improving Everyday Life for People with Rare Brain and Spine CancersDr. Terri Armstrong shares why she chose to study rare brain and spine tumors and how her research is advancing patient quality of life.
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3 Tips for Caregiver Self-CareBeing a caregiver to a patient with a brain or spine tumor is an important and challenging role, but caregivers need to focus on their health and wellness too.
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Surgical Expertise Helps Advance Treatments for Pineal Region TumorsRead how collaborating across specialties can help neuro-oncologists better understand pineal region tumors.
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Furthering 46 Years of Brain Tumor Patient Education and SupportRead how the first national advocacy organization for brain tumor education and information is expanding its services and collaborating to improve care and treatment.