NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
-
Pineal Region Tumor Survivor Lives Fully with an Inoperable TumorA pineal region tumor survivor shares how he found the best care, treatments, and resources to live.
-
NCI Presentations at the 2018 Society for Neuro-Oncology Annual MeetingRead a synopsis of the NCI-CONNECT presentations at the 2018 Annual Meeting of the Society for Neuro-Oncology.
-
Medulloblastoma Survivor Finds Hope in Clinical TrialsA mother shares her family’s 11-year quest to find the best treatments for their daughter’s medulloblastoma tumors.
-
Researching Medulloblastoma with Care and KnowledgeDr. Marta Penas-Prado discusses her role on the NCI-CONNECT team and her interest in improving the lives of patients with medulloblastoma.
-
8 Tips to Cope with Cancer During the HolidaysHolidays can be stressful if you or a loved one is living with a brain or spine tumor. Learn tips to help you cope.
-
A New Web-Based Study of Low-Grade GliomasNeurosurgeon Dr. Elizabeth Claus discusses her International Low Grade Glioma Registry, a study of the evolution of the low-grade glioma genome and the cells driving resistance to treatment.
-
Two-Time Oligodendroglioma Survivor: Never Give Up HopeA brain tumor survivor shares his experience with oligodendroglioma and advice for others.
-
Two Sons with a Rare Brain Cancer? We Choose to Fight through AdvocacyRead how a father is advocating to save his two sons with oligodendrogliomas, and how his family copes.
-
Maintaining Hope: Three Decades Living with EpendymomaLearn how a patient with an ependymoma in her spine has survived the disease for over 30 years. She shares her treatment experiences and coping tips.
-
Caregiver Journey Leads to an International Brain Tumor Patient OrganizationA brain tumor caregiver shares how her journey supporting her son led her to create a worldwide community for brain tumor patient organizations and others in the field of neuro-oncology.