NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Why a Precise Diagnosis Is Vital to Treat Brain and Spine TumorsNCI neuropathologist Dr. Kenneth Aldape is using the latest technologies to precisely diagnose rare brain and spine tumors. He shares his techniques and why they’re important to precision medicine.
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How Data Provides Hope to Rare CNS Tumor PatientsLearn how a not-for-profit organization studies the incidence, prevalence, and survival of people with rare brain and other central nervous system tumors to help facilitate research and raise awareness.
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Four-Time PNET Survivor Shares Coping TipsDunamis was four years old when she had her first surgery to remove a brain tumor. Years later, she finally received an accurate diagnosis.
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Neurosurgeon Shares Tips to Help Patients Find Specialized CareDr. Edjah Nduom treats and studies rare brain and spine cancers. He shares his knowledge to help patients find specialized care for their tumor type.
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Midline Glioma Cancer Survivor Joins Study to Help OthersJosé shares how he learned about the rare midline glioma cancer in his spine, and why he chose to participate in a clinical study to help others.
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Meningioma Survivor Finds Meaning in Rare Cancer DiagnosisDeborah is a two-time cancer survivor. In hopes of helping others, she shares what it is like to live with a type of rare brain cancer called a meningioma.
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Genetic Counselor Helps Patients Understand Cancer CareDr. Margarita Raygada helps brain and spine tumor patients understand what genetic testing means for their care and family cancer risk—and what it means for research.
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2019 NCI-CONNECT and BTTC MeetingsRead a summary of the 2019 NCI-CONNECT and BTTC meetings to learn about the latest brain and spine tumor advances and clinical trials.
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Inspiring Messages from the Brain Tumor CommunityTo help motivate you through your journey as a brain tumor survivor or caregiver, others in the brain tumor community share some words of encouragement.
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Join Us! Brain Tumor Awareness Month Guide and InformationUse our guide with resources and information to share with your community about brain tumors in May. By raising awareness, we can help those living with a brain tumor.