NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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New Multi-Institutional Study Analyzes Tumor Tissue and Patient Data to Improve CareStudying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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Reliable Patient-Reported Outcomes Data Informs Treatment DecisionsA team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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What to Expect During and After Radiation TreatmentsNick had four surgeries and multiple radiation treatments to address his ependymoma tumors. He shares what to expect during and after radiation—and how cancer changed his outlook on life.
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Fourth Annual World Summit of Brain Tumour Patient AdvocatesPatient advocates from around the world gathered to share and discuss ways to improve outcomes for people with brain tumors through collaborations, knowledge, and hope.
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Medulloblastoma Survivor Shares 5 Tips to Overcome a Rare DiagnosisKen is an 18-year survivor of a rare tumor. Although his treatments caused long-term side effects, he shares why he believes he is lucky to be alive.
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Collaborating Globally to Impact Outcomes for Brain and Spine CancersWorld-renowned neuro-oncology researchers and health care providers gathered virtually to share their work, challenges, and possible solutions to improve patient outcomes across central nervous system cancers.
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Coping with Loneliness and Creating New Traditions This Holiday SeasonThe holidays are a time to reflect and connect with your loved ones. During these uncertain times, make plans to create new holiday traditions.
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Meet the Specialist Who Coordinates Your CarePatient Care Coordinator Kristen Oshin shares how she provides comfort and guidance to people with brain and spine tumors and their caregivers. She guides them through appointments, answers follow-up questions, and helps address any care concerns.
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Things to Know About Chemotherapy for a Brain TumorGiselle shares her treatment journey with five brain tumors over 23 years. She gives important advice for managing chemotherapy and staying positive.
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How Studying the Natural History of Rare Cancers Improves CareResearch Nurse Sonja Crandon shares her work, the goals of the Natural History Study, and how it could reveal new areas of research while helping people with brain and spine tumors.