NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Deciding If and When to Have Surgery for a Spine TumorBeth discovered a tumor in the center of her spinal cord and the only treatment was surgery. She shares how she found expert care, support, and resources to help her make a decision.
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A Serendipitous Connection Helps Improve Patient Communications and OutreachKristin Odom and Brittany Cordeiro help NCI-CONNECT reach people with rare brain and spine tumors through online education and advocacy partnerships.
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2019 Adult Medulloblastoma WorkshopNeuro-oncology experts from multiple disciplines met to discuss the scientific progress and challenges of treating medulloblastoma in adults—and to find ways to collaborate to advance research and treatments.
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Spinal Cord Tumor Survivor Shares Tips to Prepare and Recover from SurgeryLee was shocked to learn he had a tumor in his spinal cord that required surgery. He shares how he found the right neurosurgeon, prepared for surgery, and recovered fully.
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How Epilepsy Surgery Helps People with Brain TumorsNeurosurgeon Dr. Kareem Zaghloul is helping people with brain tumors by performing surgery that removes their tumor and the cause of their seizures.
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Connecting to Others with a Rare Cancer DiagnosisMarcela discovered an ependymoma in her spinal cord. She shares how she found support online and participated in a study while she was living internationally.
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Telehealth: What You Need to Know about a Virtual Doctor's VisitNeuro-oncology experts share what telehealth is, its benefits and limitations, and what to expect during and after a visit.
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Advice from the Brain Tumor CommunityPatients, caregivers, doctors, and advocates share their advice to help guide you through your brain tumor journey.
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How Brain Tumors Are Diagnosed and TreatedShare our brain tumor treatment information and resources to help those living with a brain tumor.
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Advances in Brain Tumor Clinical Care and ResearchNCI’s Neuro-Oncology Branch is advancing care and treatment through collaborative scientific workshops, research discoveries, and successful clinical trials.