NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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An Immunotherapy Drug Trial Expands Across the Nation to Advance ResearchNCI-CONNECT launched an immunotherapy drug trial across its national network of collaborative institutions to reach more people with rare brain and spine tumors.
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Symposium to Advance Neuro-Oncology Survivorship CareNeuro-oncology providers, researchers, advocates, patients, and care partners gathered virtually to learn and discuss the challenges experienced by people living with brain and spine tumors and develop survivorship care guidelines.
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Finding Your Best Path and Fighting Brain CancerRobert shares how surviving a rare brain cancer has given him a new perspective and changed his approach to life, which now includes daily healthy routines and the pursuit of a greater purpose.
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Oral Drug Combination Shows Benefit for Adults with EpendymomaLearn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
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Clinical Trial Hopes to Reduce Stress and Improve Mood for People Living with Brain TumorsResearchers have developed a clinical trial using virtual reality to improve the feelings of distress and anxiety that people with brain tumors experience.
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Providing and Advancing Survivorship Care in Neuro-OncologyDr. Heather Leeper is involved in every aspect of a patient’s illness experience. She shares how she is advancing survivorship care in neuro-oncology.
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Brain and Spine Tumor Survivors Share How to CopePatients share tips to help you cope in a positive way and manage the effects of a brain or spine tumor.
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Brain and Spine Tumor Patient and Caregiver Support ResourcesNon-profit patient advocacy organizations help to educate and support individuals with a brain or spine tumor diagnosis.
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Surviving Life-Altering Effects of a Brain TumorCarol has spent nearly half her life living with her ependymoma diagnosis. She shares her long-term side effects and positive experiences from throughout her cancer journey.
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Family Support during Spine Tumor DiagnosisAndrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.