NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Rare Spine Cancer Survivor: “Ain’t Nothin’ Gonna Steal My Joy!”
Lynita has lived with ependymoma for 17 years. She shares how she endured multiple surgeries, radiation, and drug treatments—and has adjusted her life to live fully with physical limitations.
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Progress to Advance Care, Treatments, and Outcomes for Brain Tumor Patients
Read about our advances in care, treatments, and patient outcomes for brain and other central nervous systems tumors in honor of Brain Tumor Awareness Month.
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Neuroradiologist Offers Insight on MRI Scans
Neuroradiologist Dr. John Butman has advice for what to expect from brain and spinal cord imaging when you have a cancer diagnosis.
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New Research Shows How Patients with Brain and Spine Tumors Are Impacted throughout Their Cancer Journey
Five nurses attended a conference to share data from the Natural History Study, which aims to better understand brain and spine tumors and uncover areas for further research.
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Neuro-Oncology Branch Receives Awards at the 2021 Society for Neuro-Oncology Annual Meeting
Two physicians share findings from NCI-CONNECT studies in award-winning abstracts.
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Near-Death Experiences Guided by Faith
Tom survived a car crash, two bouts of cancer, and an autoimmune disorder. He shares how faith got him through hard times and changed his outlook.
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Neurosurgeon Values Teamwork for Optimal Care
Neurosurgeon Dr. John Heiss shares how his ability to provide the best care for rare brain and spine tumor patients depends heavily on teamwork—both inside and outside the operating room.
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First-in-Human Trial for People with Recurrent Rare CNS Tumors
NCI-CONNECT launched a phase 1 clinical trial for people with recurrent rare brain and spine tumors as a first step toward developing a novel drug.
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New Immunotherapy Study for Glioblastoma
A clinical trial investigates immune checkpoint inhibitors with standard treatment in people with aggressive brain cancers to understand the immune system response and improve long-term outcomes.
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Working Toward Better Radiation Responses Through Novel, Targeted Drugs
Radiation Oncologist Dr. Kevin Camphausen is helping people with brain and spine tumors by developing drugs that can enhance the impact of radiation treatment.