2018 - NCI-CONNECTions
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Medulloblastoma Survivor Finds Hope in Clinical TrialsA mother shares her family’s 11-year quest to find the best treatments for their daughter’s medulloblastoma tumors.
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Researching Medulloblastoma with Care and KnowledgeDr. Marta Penas-Prado discusses her role on the NCI-CONNECT team and her interest in improving the lives of patients with medulloblastoma.
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8 Tips to Cope with Cancer During the HolidaysHolidays can be stressful if you or a loved one is living with a brain or spine tumor. Learn tips to help you cope.
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A New Web-Based Study of Low-Grade GliomasNeurosurgeon Dr. Elizabeth Claus discusses her International Low Grade Glioma Registry, a study of the evolution of the low-grade glioma genome and the cells driving resistance to treatment.
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Two-Time Oligodendroglioma Survivor: Never Give Up HopeA brain tumor survivor shares his experience with oligodendroglioma and advice for others.
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Two Sons with a Rare Brain Cancer? We Choose to Fight through AdvocacyRead how a father is advocating to save his two sons with oligodendrogliomas, and how his family copes.
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Maintaining Hope: Three Decades Living with EpendymomaLearn how a patient with an ependymoma in her spine has survived the disease for over 30 years. She shares her treatment experiences and coping tips.
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Caregiver Journey Leads to an International Brain Tumor Patient OrganizationA brain tumor caregiver shares how her journey supporting her son led her to create a worldwide community for brain tumor patient organizations and others in the field of neuro-oncology.
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CONNECTing Neuro-Oncology Providers to Improve Approaches to Care and TreatmentNeuro-oncologist Dr. Mark Gilbert shares how he is connecting healthcare providers through a program called NCI-CONNECT to improve approaches to care and treatment.
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2018 NCI-CONNECT and BTTC MeetingsRead a summary of the inaugural 2018 NCI-CONNECT Meeting to learn about rare CNS tumor advances, clinical trials, and more disease information.