Research - NCI-CONNECTions
Rare brain and spine tumor research news and updates from NCI leading experts and collaborators. Includes articles on molecular profiling, genetic testing, and clinical studies and trials to develop better therapies.
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Reliable Patient-Reported Outcomes Data Informs Treatment DecisionsA team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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How Studying the Natural History of Rare Cancers Improves CareResearch Nurse Sonja Crandon shares her work, the goals of the Natural History Study, and how it could reveal new areas of research while helping people with brain and spine tumors.
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Advances in Brain Tumor Clinical Care and ResearchNCI’s Neuro-Oncology Branch is advancing care and treatment through collaborative scientific workshops, research discoveries, and successful clinical trials.
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How Data Provides Hope to Rare CNS Tumor PatientsLearn how a not-for-profit organization studies the incidence, prevalence, and survival of people with rare brain and other central nervous system tumors to help facilitate research and raise awareness.
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Neurosurgeon Shares Tips to Help Patients Find Specialized CareDr. Edjah Nduom treats and studies rare brain and spine cancers. He shares his knowledge to help patients find specialized care for their tumor type.
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Genetic Counselor Helps Patients Understand Cancer CareDr. Margarita Raygada helps brain and spine tumor patients understand what genetic testing means for their care and family cancer risk—and what it means for research.
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Q&A: Understanding Brain Tumor Treatment, Impact, and ResearchOur neuro-oncology providers share answers to important questions about brain tumor care, treatment, impact, and innovative research.
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Army Neurologist Helps Provide Multidisciplinary Care to Rare CNS Tumor PatientsRead how Dr. Brett Theeler is helping treat and educate patients with PXA and APXA tumors, which are among the rarest of rare brain and spine cancers.
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Improving Everyday Life for People with Rare Brain and Spine CancersDr. Terri Armstrong shares why she chose to study rare brain and spine tumors and how her research is advancing patient quality of life.
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Surgical Expertise Helps Advance Treatments for Pineal Region TumorsRead how collaborating across specialties can help neuro-oncologists better understand pineal region tumors.