2021 - NCI-CONNECTions
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Oral Drug Combination Shows Benefit for Adults with EpendymomaLearn how results from the first prospective clinical trial for adults with ependymoma led to a change in treatment guidelines.
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Clinical Trial Hopes to Reduce Stress and Improve Mood for People Living with Brain TumorsResearchers have developed a clinical trial using virtual reality to improve the feelings of distress and anxiety that people with brain tumors experience.
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Providing and Advancing Survivorship Care in Neuro-OncologyDr. Heather Leeper is involved in every aspect of a patient’s illness experience. She shares how she is advancing survivorship care in neuro-oncology.
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Brain and Spine Tumor Survivors Share How to CopePatients share tips to help you cope in a positive way and manage the effects of a brain or spine tumor.
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Brain and Spine Tumor Patient and Caregiver Support ResourcesNon-profit patient advocacy organizations help to educate and support individuals with a brain or spine tumor diagnosis.
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Surviving Life-Altering Effects of a Brain TumorCarol has spent nearly half her life living with her ependymoma diagnosis. She shares her long-term side effects and positive experiences from throughout her cancer journey.
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Family Support during Spine Tumor DiagnosisAndrea’s two children, husband, and parents have all been affected by her ependymoma diagnosis. She shares how they adjusted and provided support.
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New Multi-Institutional Study Analyzes Tumor Tissue and Patient Data to Improve CareStudying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.
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Reliable Patient-Reported Outcomes Data Informs Treatment DecisionsA team of statisticians and software developers ensures that patient-reported outcomes data are collected and analyzed effectively to inform treatment and research.
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What to Expect During and After Radiation TreatmentsNick had four surgeries and multiple radiation treatments to address his ependymoma tumors. He shares what to expect during and after radiation—and how cancer changed his outlook on life.