Support - NCI-CONNECTions
News about rare brain and spine tumor support organizations and resources. Includes articles on non-profit groups who connect those impacted and available NCI resources.
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Join Our Private Facebook Community to Share and ConnectIf you are living with a rare brain or spine tumor, you are not alone. Our private Facebook group, NCI-CONNECT Community, connects you to others with your diagnosis.
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Join Us! Brain Tumor Awareness Month Guide and InformationUse our guide with resources and information to share with your community about brain tumors in May. By raising awareness, we can help those living with a brain tumor.
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National Non-Profit Unites and Empowers the Brain Tumor CommunityRead how a national advocacy organization has helped unify and mobilize a community to advance care and knowledge for brain tumor patients and their families.
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Ependymoma Foundation Informs and Inspires a Rare Cancer CommunityKimberly Wallgren shares how her father’s cancer inspired a non-profit to educate and connect people living with ependymoma.
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Furthering 46 Years of Brain Tumor Patient Education and SupportRead how the first national advocacy organization for brain tumor education and information is expanding its services and collaborating to improve care and treatment.
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Two Sons with a Rare Brain Cancer? We Choose to Fight through AdvocacyRead how a father is advocating to save his two sons with oligodendrogliomas, and how his family copes.
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Caregiver Journey Leads to an International Brain Tumor Patient OrganizationA brain tumor caregiver shares how her journey supporting her son led her to create a worldwide community for brain tumor patient organizations and others in the field of neuro-oncology.