NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Read news and information on advances in rare brain and spine tumor research, treatment, and education from our experts. To receive new posts via email, subscribe to our NCI-CONNECTions newsletter.
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Sharing the Load: How a Strong Support System Aids Recovery from Brain SurgeryDonita’s friends and family helped create a recovery plan, cook meals, and care for her after she underwent surgery to remove her pilocytic astrocytoma.
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Smart Wearables Show Promise for Tracking Sleep Patterns in Brain Tumor PatientsAn interim study analysis demonstrates that combining Fitbit data with self-assessments is a reliable method for understanding sleep changes in patients.
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Modifying a Chemotherapy Drug Offers Hope to People with Rare Brain and Spine TumorsA phase 1/2 clinical trial is testing an investigational drug called PLX038 on hard-to-treat central nervous system tumors containing extra copies of the MYC and MYCN genes.
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Using Social Media to Educate and Engage the Brain and Spine Tumor CommunityA data analysis shows the value of the @NIHBrainTumor X (formerly Twitter) account as a resource for patients, caregivers, and advocates, as well as neuro-oncology providers and researchers.
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Working Through a Life-Changing Rare Brain Tumor DiagnosisMikaeel shares how returning to work kept him focused and optimistic throughout treatment for his oligodendroglioma.
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Examining Social Determinants of Health to Improve Brain Tumor Patient Quality of LifeA new study explores how non-medical factors influence the neurocognitive and mood-related symptoms that people with brain tumors experience. These factors include gender or sex, education, where people live, and more.
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Statistical Report Highlights Key Trends in Adolescents and Young Adults with Brain TumorsThe new analyses reveal critical information that will help providers and researchers understand the unique needs of these patients.
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A Celebration of Hope for the Brain and Spine Tumor CommunityNCI-CONNECT raised awareness for ependymoma and honored patients, care partners, and medical professionals in a butterfly release event at NIH.
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Combatting Stress and Promoting Wellness in Cancer CareOutcomes Program Manager Alvina Acquaye-Mallory answers questions about how health care providers, patients, and caregivers can cope with stress and burnout during their cancer care journey.
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2024 Brain Tumor Awareness Month GuideThis May, share information about brain and spine tumors to raise awareness, educate the community, and help people living with these cancers.