Childhood Cancer Data Initiative (CCDI)
NCI’s Childhood Cancer Data Initiative (CCDI) is building a community centered around childhood cancer care and research data. Through better data sharing, we can advance our understanding of cancer biology and improve childhood cancer diagnosis, treatment, quality of life, and survivorship.
CCDI Goals
CCDI has three foundational goals:
- gather data from every child, adolescent, and young adult (AYA) diagnosed with a childhood cancer, regardless of where they receive their care
- create a national strategy of appropriate clinical and molecular characterization to speed diagnosis and inform treatment for all types of childhood cancers
- develop a platform and tools to bring together clinical care and research data that will improve preventive measures, treatment, quality of life, and survivorship for childhood cancers
CCDI Programs
Events and Webinars
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Unlock the Power of Unstructured Data with EMERSE
Join us on January 14, 2025, from 1:00–2:00 p.m. ET for a webinar on EMERSE, a text processing system that leverages natural language processing capabilities to help you efficiently work with free text (unstructured data) from EHR systems.
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Live Demo: NCCR Data Platform
Missed the last webinar on the new National Childhood Cancer Registry (NCCR) Data Platform? Head over to our Past Webinars page for a summary and recording.
Community Stories
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KamalaniKamalani’s hope that childhood cancer treatments continue to improve could be possible through better data sharing.
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CharlieThrough the power of data sharing, Charlie was able to benefit from clinical trials that played a critical role in his treatment and recovery.
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OliviaTreatment experiences like Olivia’s could help inform treatment plans for other children with cancer.